Articles
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Dimitri Patrinos, Roxanne Caron, Bartha M. Knoppers, GenCOUNSEL Study, Ma'n H. Zawati, “Genetic Counsellors,Legal Recognition and the Road Less Travelled.” (2020) McGill Journal of Law and Health. (Accepted).
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Michael Lang, Ma’n H. Zawati, Bartha Maria Knoppers, “International mHealth Research: Old Tools and New Challenges.” (2020), 48(1) Journal of Law, Medicine, & Ethics.
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Rebecca Barnes, Kristine Votova, Vasiliki Rahimzadeh, Noura Osman, Andrew M Penn, Ma'n H. Zawati, Bartha M. Knoppers, "Biobanking for Genomic and Personalized Health Research: Participant Perceptions and Preferences." (2020) 18(3), Biopreservation and Biobanking, 204-212.
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Brigid Unim, C De Vito, Julie Hagan, P Villari, Bartha Maria Knoppers, Ma’n H. Zawati, “The Provision of Genetic Testing and Related Services in Quebec, Canada.” (2020), 11 Frontiers in Genetics.
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Ma’n H. Zawati, Don Chalmers, et al., “Country Reports.” (2019) 47(4) J Law Med Ethics, 582-704.
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Ma’n H. Zawati, “Introduction to the Country Reports.” (2019) 47(4) J Law Med Ethics, 581.
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Mark A. Rothstein et al. (including Ma’n H. Zawati), “Legal and Ethical Challenges of International Direct-to-Participant Genomic Research: Conclusions and Recommendations.” (2019) 47(4), J Law Med Ethics, 705-731.
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Adrian Thorogood, Alexander Bernier, Ma’n H. Zawati & Bartha Maria Knoppers, “A Legal Duty of Genetic Recontact in Canada” (2019) 40(2) Health Law in Canada, 58-78.
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Ma'n H. Zawati & Michael Lang, "Mind the App: Considerations for the Future of Mobile Health in Canada" (2019) 7(11) JMIR Mhealth Uhealth, e15301, 1-3.
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Daniel Bouthillier, Ma’n H. Zawati & Yann Joly, “Personalised medicine–introduction to the technology” (2019) Lexis Nexis, LexisPSL practice note.
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Ma'n Zawati, "Will an App a Day Keep the Doctor Away?" (Summer 2019) Brainstorm 1, 28-29.
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Mark A Rothstein, Ma’n H. Zawati & Bartha Maria Knoppers, “Regulatory Landscape of International Direct-to-Participant (DTP) Genomic Research: Time to Untie the Gordian Knot?" (2019) 47(2) The Journal of Law, Medicine & Ethics, 336-341.
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Ma'n H. Zawati, Bartha Maria Knoppers, "Reciprocity and the Quest for Meaningful Disclosure", (2019) 19:5 The American Journal of Bioethics (AJOB), 36-38.
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Bartha M. Knoppers, Adrian Thorogood, Ma’n H. Zawati, “Letter: Relearning the 3 R’s? Reinterpretation, recontact, and return of genetic variants”, (2019) Genetics in Medicine, doi:10.1038/s41436-019-0494-1.
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Trevor J.B. Dummer, Philip Awadalla, Catherine Boileau, et al. (including Ma'nZawati), "The Canadian Partnership for Tomorrow Project: a pan-Canadian platform for research on chronic disease prevention", (2018) 109:23 Canadian Medical Association Journal (CMAJ), E710-E717.
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Erika Kleiderman, Amy Pack, Pascal Borry, Ma'n Zawati, "The author who wasn't there? Fairness and attribution in publications following access to population biobanks", (2018) PLoS ONE, 13(3): e0194997.
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Michael Lang & Ma'n H Zawati, "The App Will See You Now: Mobile Health, Diagnosis, and the Practice of Medicine in Quebec and Ontario", (2018) Journal of Law and the Biosciences, 1-32.
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Ma'n H Zawati, Anne-Marie Tassé, Maimuna Mendy, Élodie Caboux, & Michael Lang, "Barriers and Opportunities in Consent and Access Procedures in Low and Middle-income Country Biobanks: Meeting Notes from the BCNet Training and General Assembly", (2018) Biopreservation and Biobanking, 10.1089/bio.2017.0081.
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Sarah Moore, Anne-Marie Tassé, Adrian Thorogood, Ingrid Winship, Ma'n H Zawati, Megan Doerr, "A Systemic Review of Consent Processes for Mobile App Mediated Research", (2017) 5:8 JMIR Mhealth Uhealth, e126.
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Ma'n Zawati and Michael Lang. "Biobank donors and the concept of benefit: time for reciprocity" (2017) Journal of Law and the Biosciences, 4(2): 371-376.
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Mihaela Pupavac, Ma'n H. Zawati, David S. Rosenblatt, "A RaDiCAL gene hunt" (2017) Journal of Taibah University Medical Sciences, 12(3): 194-198.
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Bartha Maria Knoppers, Karine Sénécal, Joanne Boisjoli, Pascal Borry, Martina C. Cornel, Conrad V. Fernandez, Jasjote Grewal, Ingrid A. Holm, Erin Nelson, Wim Pinxten, Mahsa Shabani, Anne-Marie Tassé, Ma'n H. Zawati, Ellen Wright Clayton, "Recontacting Pediatric Research Participants for Consent When They Reach the Age of Majority." (2016) P3G International Paediatric Research Platform, 38:6.
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Michael J. Szego, and Ma’n H. Zawati. “Whole Genome Sequencing as a Genetic Test for Autism Spectrum Disorder: From Bench to Bedside and Then Back Again.” Journal of the Canadian Academy of Child and Adolescent Psychiatry 25.2 (2016): 116–121. Print.
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Shahad Salman, George Vardatsikos, Denise Avard, Nicole Palmour, Ken Dewar, and Ma'n H. Zawati, "FMT Happens: Regulating Fecal Microbiota Therapy in Canada; What You Need to Know." (2016) World Medical & Health Policy, 8: 95–106. doi:10.1002/wmh3.174
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Adrian Thorogood & Ma'n H. Zawati, "International Guidelines for Privacy in Genomic Biobanking (Or the Unexpected Virtue of Pluralism)" (2016) Journal of Law, Medicine and Ethics, Special Issue.
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Edward S. Dove & Ma’n H. Zawati, “Amendments to the Civil Code of Quebec’s Research Provisions: A Legislative Comment” (2015) 8 McGill JL & Health, 79-110.
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Gabrielle Bertier, Ma’n H. Zawati & Yann Joly, “The Role of Whole Genome and Whole Exome Sequencing in Preventive Genomic Sequencing Programs” (2015) 15 AJOB, 22-23.
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Kym Boycott […] Ma’n H. Zawati, et al., “The Clinical Application of Genome-wide Sequencing for Monogenic Diseases in Canada: Position Statement of the Canadian College of Medical Geneticists” (2015) 52 Journal of Medical Genetics, 431-437.
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Bartha Maria Knoppers, Ma’n H. Zawati & Karine Sénécal, “Return of genetic testing results in the era of whole-genome sequencing”, (2015) Nature Reviews Genetics (in press).
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Ma’n H. Zawati, Anne Junker, Bartha Maria Knoppers and Vasiliki Rahimzadeh, “Streamlining Review of Research Involving Humans: Canadian Models” (2015) Journal of Medical Genetics, doi: 10.1136/jmedgenet-2014-102640.
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Adrian Thorogood, Ma’n H. Zawati, Bartha Maria Knoppers, “The Introduction of Point-of-Care Genetic Tests for Hospital Acquired Infections: Legal Considerations” (2014) 12(1) Current Pharmacogenomics and Personalized Medicine, 43-50.
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Tim Caulfield, Sarah Burningham, Yann Joly Y. [...] Ma’n H. Zawati, “A review of the key issues associated with the commercialization of biobanks” (2014) 1(1) Journal of Law and the Biosciences, 94-110.
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Ma’n H. Zawati, “There Will be Sharing: Population Biobanks, the Duty to Inform and the Limitations of the Individualistic Conception of Autonomy” (2014) 21 Health Law Journal, 97-140.
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Ma’n H. Zawati and Adrian Thorogood, “The Physician Who Knew Too Much: A Comment on Watters v White”, (2014) 21 Health Law Journal, 1-27.
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Amy L. McGuire, Bartha Maria Knoppers, Ma’n H. Zawati, Ellen W. Clayton, “Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings” (2014) 24(5) Genome Research, 719-723.
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Ma’n H. Zawati, Bartha Maria Knoppers and Adrian Thorogood, “Population Biobanking and International Collaboration” (2014) 81 Pathobiology, 276-285.
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Ma’n H. Zawati, David Parry, Adrian Thorogood, Minh Thu Nguyen, Kym Boycott, David Rosenblatt and Bartha Maria Knoppers, “Reporting Results from Whole-Genome and Exome Sequencing in Clinical Practice: A Proposal for Canada?” (2014) 51(1) J Med Genetics, 68-70.
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Edward S. Dove, Bartha Maria Knoppers, Ma’n H. Zawati, “Towards an Ethics Safe Harbor for Global Biomedical Research” (2014) 1(1) Journal of Law and the Biosciences, 3-51.
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Bartha Maria Knoppers, Ma’n H. Zawati, Eliza Cohen, “Special Issue – From Biobanks to the Clinic” (2014) 3(2) Applied & Translational Genomics, 21-22.
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Ma’n H. Zawati, David Parry & Bartha Maria Knoppers, “Best Interests of the Child and the Return of Results in Genetic Research: International Comparative Perspectives” (2014) 15(72) BMC Medical Ethics, 1-13.
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Bartha Maria Knoppers, Denise Avard, Karine Sénécal, Ma’n H. Zawati & P3G International Paediatrics Platform members, “Return of Whole-genome Sequencing Results in Paediatric Research : A Statement of the P3G international Paediatrics Platform” (2014) 22(1) European Journal of Human Genetics, 3-5.
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Ma’n H. Zawati, Eliza Cohen, David Parry, Denise Avard and David Syncox, “Ethics Education for Clinician-Researchers in Genetics: The Combined Approach” (2014) Applied and Translational Genomics Journal.
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Bartha Maria Knoppers, Edward S. Dove & Ma’n H. Zawati, “Demistifying Biobanks”, (2013) 43(5) Hastings Center Report (September – October 2013), 4-5.
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Bartha M. Knoppers, Mylène Deschênes, Ma’n H. Zawati & Anne-Marie Tassé, “Population studies: return of research results and incidental findings Policy statement” (2013) 21(3) European Journal of Human Genetics, 245-247.
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Emily Kirby, Ma’n H. Zawati & Bartha Maria Knoppers, “Electronic Consent to Health Research in Canada” (2013) 91(2) Canadian Bar Review, 417-433.
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Edward S. Dove, Bartha Maria Knoppers & Ma’n H. Zawati, “An Ethics Safe Harbor for International Genomics Research?” (2013) 5(11) Genome Medicine, 1-11.
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Lee Black, Denise Avard, Ma’n H. Zawati, Bartha Maria Knoppers, Josée Hébert & Guy Sauvageau, “Funding Considerations for the Disclosure of Genetic Incidental Findings in Biobank Research” (2013) 84(5) Clinical Genetics, 397-406.
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Bartha M. Knoppers, Amélie Rioux & Ma’n H. Zawati, “Pediatric Research ‘Personalized’? International Perspectives on the Return of Results” (2013) 10(1) Personalized Medicine, 89-95.
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Ma’n H. Zawati & Bartha M. Knoppers, “International normative perspectives on the return of individual research results and incidental findings in genomic biobanks” (2012) 14 Genet Med, 484-489.
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Ma’n H. Zawati, “Les conseillers en génétique et les professions médicales et infirmières au Québec: des frontières brouillées ?” (2012) 6 MJLH, 137-187.
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Bartha M. Knoppers, Ma’n H. Zawati & Emily Kirby, “Sampling Populations of Humans Across the World: ELSI Issues” (2012) 13 Annu Rev Genomics Hum Genet, 395-413.
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Ma’n H. Zawati & Amélie Rioux, “Biobanks and the Return of Research Results: Out with the Old and In with the New?” (2011) 39 JLME, 614-620.
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Anne Cambon-Thomsen et al. (including Ma’n H. Zawati), “The role of a bioresource research impact factor as an incentive to share human bioresources” (2011) 43(6) Nat Genet, 503-504.
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Vural Ozdemir et al. (including Ma’n H. Zawati), “Towards an Ecology of Collective Innovation: Human Variome Project (HVP), Rare Disease Consortium for Autosomal Loci (RaDiCAL) and Data-Enabled Life Sciences Alliance (DELSA)” (2011) 9 Curr Pharmacogenomics Person Med, 243-251.
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Vural Ozdemir et al. (including Ma’n H. Zawati), “Vaccines of the 21st Century and Vaccinomics: Data Enabled Science Meets Global Health to Spark Collective Action for Vaccine Innovation” (2011) 15(9) OMICS, 523-527.
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Yann Joly et al (including Ma’n H. Zawati), “Diagnostic Testing for Vaccinomics: Is the Regulatory Approval Framework Adequate? A Comparison of Canada, the United States, and Europe” (2011) 15(9) OMICS, 597-605.
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Bartha M. Knoppers et al. (including Ma’n H. Zawati), “Towards a data sharing Code of Conduct for international genomic research” (2011) 3(7) Genome Medicine doi: 10.1186/gm262, 1-4.
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Ma’n H. Zawati, Brian Van Ness & Bartha M. Knoppers, “Incidental Findings in Genomic Research: A Review of International Norms” (2011) 9 GenEdit 1 (Translated in French as well), 1-8.
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Ma’n H. Zawati, Matthew Hendy & Yann Joly, “Incidental Findings in Data Intensive Postgenomic Science and Legal Liability for Clinician-Researchers: Ready for Vaccinomics?” (2011) 15(9) OMICS, 615-624.
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Ma’n H. Zawati, Pascal Borry & Heidi C. Howard, “Closure of population biobanks and direct-to-consumer genetic testing companies” (2011) 130(3) Hum Genet, 425-432.
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Bartha M. Knoppers & Ma’n H. Abdul-Rahman (Zawati), “Health Privacy in Genetic Research: Populations and Persons” (2009) 28(2) Politics Life Sci, 99-101.
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Bartha M Knoppers, Ma’n H. Abdul-Rahman (Zawati) & Karine Bédard, “Genomic Databases and International Collaboration” (2007) 18(2) KLJ, 291-311.