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PRESENTATIONS

Gouvernance des données : anticiper pour mieux innover

May 9, 2025
Congrès ACFAS 2025
Montreal, Québec

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Emerging trends in genomic data governance

May 8, 2025
BRCA 2025 Symposium: Tenth International Symposium on Hereditary Breast and Ovarian Cancer
Montreal, Québec

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Clarifier le droit à l’explicabilité : la legislation et la prise de decision clinique automatisée

May 5, 2025
ACFAS
Montreal, Québec

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Precision Medicine: National Initiatives and Collaborations: D2R, DNA to RNA

April 11, 2025
RareKids-CAN Annual Conference
Ottawa, Ontario, Canada
RareKids-CAN

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Identifying core consent elements for pangenomic studies: Section 2 – Harmonization challenges

April 4, 2025
GA4GH Connect 2025
Boston, USA
Global Alliance for Genomics and Health

Direct to consumer marketing and sponsored testing of genomic innovations

April 3, 2025
GE3LS Theme 2
Boston, USA

REWS in focus: bridging regulatory and ethical gaps across GA4GH

April 3, 2025
GA4GH Connect 2025
Boston, USA
Global Alliance for Genomics and Health

The path of implementation of REWS products

April 2, 2025
GA4GH Connect 2025
Boston, USA
Global Alliance for Genomics and Health

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Data Governance and Policy Capacity-Building: Towards More Diverse Datasets

March 12, 2025
Human Genome Meeting 2025
Durban, South Africa
HUGO (The Human Genome Organization)

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Data Governance: Why anticipating is critical for innovating

January 7, 2025
Pangenome Graphs: Tools and Applications Workshop
with Maushumi Bhattacharjee
Holetown, Barbados
Bellairs Research Institute

Future-Proofing Health Innovations: A Collaborative Strategy for Enhanced Policy, Governance, and Regulatory Frameworks for Advanced Therapeutics

November 20, 2024
2024 Canadian Science Policy Centre
Ottawa, Canada

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Everything you wanted to know about data, but were afraid to ask: ethical, legal and social issues surrounding data governance

November 5, 2024
Till & McCulloch Meetings
Montreal, Canada
Stem Cell Network

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Policy for International Genomic Dara Sharing in an Interconnected World

October 21, 2024
Victor Philip Dahdaleh Institute of Genomic Medicine – Research Symposium
Montreal, Canada
McGill University

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Precision medicine and noble technologies: the case of mHealth apps

October 17, 2024
Shanghai, China
Shanghai Normal University

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Crowdsourcing smartphone data for genomic research: ethical and legal considerations

October 14, 2024
Shanghai, China
East China University of Political Science and Law

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From code to care: Clinician and researcher perspectives on an optimal therapeutic web portal for acute myeloid leukemia

September 20, 2024
Data Justice in Genomics and Health
Melbourne, Australia
Monash University and Global Alliance for Genomics & Health (GA4GH)

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Generative AI for Genomic Data Sharing

September 17, 2024
12th Plenary
Melbourne, Australia
Global Alliance for Genomics and Health (GA4GH)

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Global Health & Genomics

September 7, 2024
On The Verge
Montreal, Canada
McGill IGEM

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Data Governance in the QSCC

August 28, 2024
Laurie Hendren Symposium
Montreal, Canada
Opal Health Informatics Group

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Roundtable 1: Improving Data Sharing and Governance Frameworks and Advancing Research

August 16, 2024
ingle Cell LATAM Symposium: Connecting Communities and Advancing Research
Rio de Janeiro, Brazil
The Brazilian National Institute of Cancer (INCA) and Wellcome Connecting Science (WCS)

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Ethical and Policy Issues in Biobanking: Grand Rounds

August 5, 2024
Amman, Jordan
King Hussein Cancer Centre

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Ethical and Policy Issues in Biobanking: A Workshop

July 30, 2024
Amman, Jordan
King Hussein Cancer Centre

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Bioethics and Good Governance in Genomics: Anticipate to Innovate

June 4, 2024
17th World Congress of Bioethics
Doha, Qatar
Center for Islamic Legislation and Ethics & World Innovation Summit for Health

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The Charter for Regenerative Medicine

May 31, 2024
McGill Regenerative Medicine Symposium 2024
Montréal, Québec
McGill MRM

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Crowdsourcing smartphone data for genomic research: ethical and legal considerations

April 17, 2024
WYNG-Hatton Lecture
Ma'n Zawati
Cambridge, UK
PHG Foundation

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Consent for Data Sharing: RQDM Authorization and the All For One Knowledgebase

January 30, 2024
Let’s be Precise: The Future of Child Health
Toronto, Ontario
SickKids, CHILD Cohort Study

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Ethics, public policy, and regulatory compliance

November 23, 2023
Pan-Canadian Genome Library Launch Event
Montréal, Québec

Crowdsourcing Smartphone Data for Biomedical Research and Algorithm Training: Towards an App Atlas

November 13, 2023
Crowdsourcing Smartphone Data for Biomedical Research and Algorithm Training
Montréal, Québec
Centre of Genomics and Policy, Université de Montréal

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Accès aux données de recherche : une question de réciprocité

November 2, 2023
Journées d’étude des comités d’éthique de la recherche et de leurs partenaires 2023
Québec, Québec
Ministère de la Santé et des Services sociaux

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Genomics, Ethics, and Policy : Good Governance to Foster Innovation

October 31, 2023
6th GCC eHealth Workforce Development Conference
Dubai, United Arab Emirates
ZIMAM

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Charte pour la médecine régénératrice

September 22, 2023
Ensemble pour la thérapie cellulaire et la médecine régénératrice 2023 Syposium
Montréal, Québec

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One App a Day to Keep the Doctor Away?: Ethical Considerations in the Use of mHealth Applications in both the Clinical and Research Settings

August 7, 2023
Grand Rounds
Amman, Jordan
King Hussein Cancer Center

What’s App Doc?: Ethical, Legal and Policy Considerations in the Use of mHealth Apps in both the Clinical and Research Settings

August 1, 2023
Ma'n H. Zawati
Amman, Jordan
University of Jordan Hospital

Crowdsourcing Smartphone Data for Biomedical Research and Algorithm Training: Ethical and Legal Questions

June 11, 2023
European Society of Human Genetics 2023 Conference
Glasgow, United Kingdom

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The Future Legal Recognition of Genetic Counselling in Canada: Legal and Stakeholder Perspectives

June 1, 2023
Montréal, Québec - Online
McGill University Health Centre

Smartphone Crowdsourced Medical Data for Algorithm Training and Biomedical Research: Ethical and Legal Points to Consider

May 9, 2023
Governance of Genomics & A.I. Conference
Hong Kong
Centre for Medical Ethics and Law, University of Hong Kong

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Why is regulation of genetic counsellors important?

May 9, 2023
GenCOUNSEL Connect: Bridging patients to practice, profession, and policy
Online
GenCOUNSEL

Germline Modification: Ethico-Legal Issues

March 30, 2023
Sustainability and Bioethics Conference (BIEN 590)
Montréal, Québec
Faculty of Medicine and Health Sciences, McGill University

Streamlining Access Procedures to Research Biobanks & Databases

March 24, 2023
Regroupement des gestionnaires de contrats de recherche du Québec Meeting
Montréal, Québec
Jewish General Hospital

Variation and Commonality of Human Subjects Protections Around the Globe

March 15, 2023
Annual Clinical Genetics Meeting (ACGM)
Salt Lake City, Utah

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Use of Communication Technologies in Patient Care

February 21, 2023
Les après-midi de la justice
Montréal, Québec
Centre de Recherche en Droit Public

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Consent in Genomics: Quo Vadis?

February 9, 2023
14th annual Summit for Clinical Ops Executives (SCOPE)
Orlando, Florida

L’éthique et la gouvernance d’une structure internationale de séquençage génomique

November 29, 2022
Colloque Entretiens Jacques Cartier-VITAM
Online

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Patient Information: Registries and Beyond

November 22, 2022
Rare Disease 2022 Fall Conference (CORD)
Toronto, Ontario

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Ethical Challenges of Personalized Medicine

November 2, 2022
Personalized Medicine Current Applications in Clinical Research and Regulatory Framework
Online
European CRO Federation Training

Mind the app: Crowdsourcing research genomic databases and data-sharing practices

September 20, 2022
McGill-Riken Symposium
Montréal, Québec

Bioethics of Genetic Testing in Clinical Care and Research

August 22, 2022
Grand Rounds
Amman, Jordan
King Hussein Cancer Centre

Informed Consent in Clinical Practice and in Research Settings Involving Genetic Testing

August 18, 2022
Ethics in Genetics Workshop
Amman, Jordan
King Hussein Cancer Centre

Privacy and Data-Sharing of Genetic Testing Results

August 18, 2022
Ethics in Genetics Workshop
Amman, Jordan
King Hussein Cancer Centre

Return of Results and Incidental Findings in Clinical Practice and in Research Settings

August 18, 2022
Ethics in Genetics Workshop
Amman, Jordan
King Hussein Cancer Center

Pediatric Genetic Testing in Clinical Practice and in Research Settings

June 18, 2022
Ethics in Genetics Workshop
Amman, Jordan
King Hussein Cancer Centre

Ethical, Legal and Policy Issues in Genomics

June 9, 2022
Human Genetics Symposium of the 46th Annual Canadian College of Medical Geneticists Scientific Meeting
Online

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Revolutionizing healthcare with the potential of RNA

April 29, 2022
Panel discussion, Effervescence - Montréal, QC

Pan-Canadian genomic core consent

April 22, 2022
CAREB-ACCER Virtual Conference - Online

Les innovations génétiques et le “wrongful birth”

March 11, 2022
Entretiens Jacques Cartier Lyons-Québec
Online

Will an App a Day Keep the Doctor Away?: Ethical and Legal Issues Surrounding mHealth Apps - A Canadian Perspective

March 2, 2022
Law and Technologies Seminar Series
Online
University of Oxford

Centre of Genomics and Policy (CGP)
McGill
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